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Roche Signs Agreement with PTC Therapeutics to Advance Treatment for Spinal Muscular Atrophy (SMA)
…Genzyme, Merck, Pfizer and Roche. For more information, visit the company’s website at www.ptcbio.com. About Roche Headquartered in Basel, Switzerland, Roche is a leader in research-focused healthcare with combined strengths…
Read MoreEvery Life Foundation for Rare Diseases issues end of year action alert
…FDA approval process, and ensure US patients get access to early stage clinical trials. 2. Sign-on to Support the OPEN ACT – The OPEN ACT is the legislative component of…
Read MoreNeurology Today: “Advocacy for Neurological Disease: The ‘Family Business’ No Family Wants”
…virtually ignored, if not unknown. These are the families of children with complex, little-known neurological disorders like spinal muscular atrophy (SMA) and Rett syndrome. Within the last two decades, especially…
Read MoreEnzo Biochem Unit Launches First-to-Market Survival Motor Neuron (SMN) Protein Immunoassay System
…to develop research tools, diagnostics and therapeutics, and serves as a provider of test services, including exotic tests, to the medical community. Since our founding in 1976, our strategic focus…
Read MoreClinical Research
Research: Clinical Research Research: Clinical Research Another critical component of the SMA Foundation’s portfolio is the clinical research infrastructure required for clinical trials. The SMA Foundation has invested over $15M…
Read MoreFDA Approves Biogen’s SPINRAZA™ (nusinersen) for Spinal Muscular Atrophy
…SPINRAZA. This was truly a community effort which has led to the first approved effective treatment for SMA. For more information on how to obtain the drug please visit www.spinraza.com…
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