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SMA Patient Registry New Website is Here!
…Spinal Muscular Atrophy Patient Registry Website! The Website now allows individuals to participate in the Registry completely through on-line interaction including registering, completing questionnaires, learning about and signing up for…
Read MoreSMA Foundation and Assay Designs, Inc. Release New SMN EIA Kit
…Neuron (SMN) protein, the critical protein that is deficient in Spinal Muscular Atrophy. The Assay Designs® SMN (human) Enzyme Immunometric Assay (EIA) kit is a complete kit for the quantitative…
Read MoreSMA Foundation and Enzo Life Sciences Inc. Partner to Release New SMN EIA Kit
…here to obtain an order form for the EIA Kit and here to view the Kit Insert. Questions about obtaining the ELISA can be answered by contacting Brett Chung at…
Read MoreSMA Foundation CEO featured in a series of interviews during SMA Awareness Month
…several interviews where she discussed SMA, the recent FDA drug approvals SMA, and the remaining unmet need for patients. Please see below for links to the interviews. https://empoweredpatientradio.com/accelerating-development-of-treatments-for-spinal-muscular-atrophy-with-karen-chen-sma-foundation https://www.youtube.com/watch?v=hd-OhwSbvNU https://www.youtube.com/watch?v=hd-OhwSbvNU…
Read MorePTC Therapeutics and Spinal Muscular Atrophy Foundation Announce $8.5 million Small Molecule Development Collaboration
…visit www.smafoundation.org or call (646) 253-7100. For more information: Jane Baj PTC Therapeutics, Inc. (908) 912-9167 jbaj@ptcbio.com Sheryl Seapy Pure Communications (949) 608-0841 sheryl@purecommunicationsinc.com Cynthia Joyce SMA Foundation 646-253-7100 [email protected]…
Read MoreJoint Program in Spinal Muscular Atrophy Enters First Stage of Clinical Development
…form the basis for collaborations with leading biopharmaceutical companies. For more information on the company, please visit the website www.ptcbio.com. For more information please contact: PTC Therapeutics, Inc. Jane Baj…
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