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Comprehensive Book on Spinal Muscular Atrophy Published
…advances in clinical research, including natural history studies, motor function scales and outcome measures, and biomarkers. The section concludes with lessons learned in clinical trials. Appendices Index Companion Materials, http://booksite.elsevier.com/9780128036853/…
Read MoreNew Push for NIH Funding Urged
…of further negotiations among the House, the Senate and the White House. “We are terrified of flat funding at NIH,” said Amy L. Comstock, chief executive officer of the Parkinson’s…
Read MoreA Thousand More
…midst of a great burden, one small child – with a seemingly endless supply of love – is the blessing that holds a family together. See the project at http://mediastorm.com/training/a-thousand-more…
Read MoreExperienced leaders in business, media, and law, join the SMA Foundation’s Board of Directors
…York. She is also co-chair of the Firm’s Capital Commitment Committee. Ms. Meates joined Morgan Stanley in 1992 in the Investment Banking Division and spent most of her career in…
Read MoreSMA Foundation Observes Rare Disease Day
…in more than 60 countries, with a national sponsor in each country. NORD is the sponsor in the U.S. More than 500 patient organizations, government entities, research institutions, and companies…
Read MoreCSHL Shows Correcting RNA Splicing May Help Treat SMA
…muscular atrophy (SMA) patients, and is now ready to be tested in mouse models. “SMA patients who suffer from motor-neuron degeneration may benefit from our ability to correct the mRNA…
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